More than a medal

Dear fellow Mommies:

You wouldn’t be seeing any photos on my post today. This no-visuals effect is deliberate. There is something in my son CJ’s case that needs to be addressed more urgently than his K2 medal.  Just as importantly, I know you can read and I will appreciate it if you take a moment to read some info:

Pervasive developmental disorder (PDD) is characterized by delays in the development of socialization and communication skills. Symptoms may include problems with using and understanding language; difficulty relating to people, objects, and events; unusual play with toys and other objects; difficulty with changes in routine or familiar surroundings, and repetitive body movements or behavior patterns. Children with PDD vary widely in abilities, intelligence, and behaviors. Some children do not speak at all, others speak in limited phrases or conversations, and some have relatively normal language development. Repetitive play skills and limited social skills are generally evident. NIMH

The phrases I highlighted are issues evident in CJ’s development. The first clinical impression did not differ at all from results of my own research – selective mutism. CJ’s developmental pediatrician wrote the exact same words on the clinical report. This year the new diagnosis, PDD tagged new recommendations to see a psychologist, a speech therapist and an occupational therapist.

Remember that purple ATM card featured on my post for the purple theme we had two weeks ago? Now you know the color was just coincidence and it was not  flaunted for vanity. Financing a child’s developmental issues is the purpose of that card I wish I never had to be involved with.  But I am trying to be brave here as I am doing this alone.

So do I ask, “why me, why my son, God?” or “why is CJ’s Dad NOT willing to pitch in?” Nope. My question is “Dear God, what am I supposed to do next?”

And God in His infinite capacity to be cool answers me before I could even send the next funds for CJ’s therapy sessions. My mother sent a long text on CJ’s progress:

-on a niece’s cooing baby, CJ observes, “She smiles.”
-pointing at an altar in a clothes shop, “Jesus is over there.”
-response to his Lola’s “where is Jesus?,” “There on the wall.”
-last night before falling asleep, “I want to ride a halicopter. Mommy will sleep here?”

Each day brings a new hope, new anticipation and a new resolve to learn continually and improve.  Thanks for reading. I welcome your thoughts.

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This entry was posted in CJ, Learning Adventures, Mommy Moments, Mommyhood and tagged . Bookmark the permalink.

11 Responses to More than a medal

  1. Mirage says:

    Much as this is a sensitive topic, I’d like to commend you for having the heart and the courage to accept CJ’s development with positivity. I am no expert but for sure, CJ would be the only one to nurture or otherwise neglect himself…the people around him, how they interact with him will also play a big role in his development…one needs to continually tap his intelligence as you and your mom do…

  2. Pinx says:

    i hear you mommy! my hubby’s nephew also had some developmental problems and delays and what’s unfortunate was that my SIL couldn’t love his own son. my MIL brought him up and when he was diagnosed to have ASD, my MIL’s heart broke. she was in denial. but i was already aware that time that the kid has to be checked. i salute you for being so dedicated and i know how hard it is. we can only say, “thank you Lord for everything.”

  3. Cecile says:

    you are such a loving, patient and brave woman…i admire you for that! i like the phrase where you said: “Dear God, what am I supposed to do next?”. For me, that is the right question to ask…instead of questioning God..as if blaming HIM!

    Congrats to CJ’s developments…he’ll get there…just need more patient and faith….which you already have…will include you and CJ on my prayers!

  4. chubskulit says:

    Oh sis, I am not aware of CJ’s development problem before. I admire you so much for being such optimistic and for facing this challenge with much braveness in your heart. May God continue to shower you with strength. I am sure CJ will do much progress with the therapy and with a loving Mom like you!

    My Burritos’ Progress, come and see.

  5. MommyLES says:

    You are one brave woman and very optimistic too. My prayers are with you and CJ and hope to learn more developments from your child. God bless.

  6. jeng says:

    As a mother myself, I feel your pain and commend you for being strong. It is not easy to accept things when they go wrong, but your faith will see you through. Just remember that there is a rainbow after every storm, and you deserve to see that rainbow someday Mommy Hazel. God bless you and your family!

  7. Willa says:

    I still want to congratulate you for being brave for CJ. I know it’s not easy but GOD will be there for you and him every step of the way. God can move mountains you know, PDD is only a name and GOD is the name above all names.

    MommyMoments#86:Congratulations!

  8. Simply Dyes says:

    i admire your courage and strength. May God be with you and CJ.

  9. Chris says:

    it is not an easy task mommy hazel but i know God allowed this trial because He knows you can be the best mom for CJ.. He will be with you along the way and I know you will be able to guide and provide for CJ’s special needs.

    can you please send me an email at amador dot christine at gmail dot com.

    many thanks!!

  10. kimmy says:

    be strong mommy.. everything happens for a reason. God will find a way..

  11. seth says:

    I know God is always there to guide and protect you, your family especially CJ…God Bless you more!

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